Burosumab
IRB
CHLA-18-00340
X-linked Hypophosphatemia Disease Monitoring Program – (XLH-DMP)
To collect information on the long-term effects of XLH on children and adults who have participated in burosumab clinical trials, adults and children who have not participated in burosumab clinical trials, and who may or may not have been treated with burosumab during the course of the study.
Coordinator Contact
Rebeca Martinez
Contact Email
rebmartinez@chla.usc.edu