Content related to ‘A Rare Disease, But Not For Us’

“You’re doing a good job, buddy.” Those are the loving words 5-year-old Carter Holt whispers to his little brother, Forrest, whenever he leaves his bedside. For the last three years, Carter has been

Will, 15, had no idea he had a cyst in his brain until he was injured in a lacrosse game. Grateful for the lifesaving care he received at Children’s Hospital Los Angeles, the teen and his family are

Born with a rare genetic disorder, Oliver needed a new kidney—and lots of care. Thanks to a multidisciplinary team at Children’s Hospital Los Angeles, the 3-year-old is now thriving.

In end-stage renal disease, Maverick needed a kidney transplant. When a donor didn't turn up fast enough, his parents decided to look in-house.

A young boy is diagnosed with ARCAPA, a congenital heart defect so rare that the CHLA cardiologist who diagnosed the condition had never encountered it before in more than two decades of pediatric

Combining expertise with ingenuity, a team of cardiovascular specialists fixes a rare heart defect in a premature baby.

This story is shared in the words of Gina Rich, mother of Ava. In mid-February I noticed a bump on my daughter Ava's head. She was 8 at the time. I thought she must have just bumped it playing around

A tumor was found in Jake’s chest only months after his younger brother Dane finished treatment for leukemia. Unable to find a genetic link that might explain why, CHLA doctors worked to save both

An experienced runner who’d traveled around the globe to race, Randy Pentis was used to seeing courses lined with gawking onlookers. But this? This was something else entirely. He was chugging along