Children with spina bifida often experience complex health challenges that affect multiple systems in their bodies, requiring advanced, coordinated care from a team of experts.
At Children's Hospital Los Angeles, our Spina Bifida Program offers exceptional, specialized care for babies, children, and teens with spina bifida — the second most common major birth defect in the United States. As the largest spina bifida center in Southern California and one of the largest in the nation, our program is dedicated to providing comprehensive, compassionate care at every stage — from prenatal diagnosis to active transition into independent adulthood. Our team of pediatric experts are uniquely trained to address the complex needs of children with spina bifida and other spinal cord abnormalities, offering families the highest level of support and expertise.
The Children’s Hospital Los Angeles Difference
Choosing our Spina Bifida Program means children will have access to a dedicated, multidisciplinary team of specialists who collaborate to create personalized treatment plans. With expertise in both surgical and non-surgical approaches, we are committed to enhancing the quality of life and long-term outcomes for every child in our care. We integrate advanced medical technology, innovative treatments, and compassionate care to provide families with the best possible experience.
Our program includes comprehensive prenatal care through our Fetal Maternal Center, where families can prepare early with specialized services like prenatal counseling, early diagnosis, and tailored treatment options for their unborn babies. As a nationally recognized Spina Bifida Association Clinic Care Partner, we uphold the highest standards in spina bifida treatment, ensuring patients and families receive the most advanced care available. We also prioritize culturally appropriate care, offering support that respects and meets each family’s cultural and linguistic needs, so that everyone feels understood, comfortable, and fully supported throughout their journey.
Advancing Fetal Surgery Research and Innovation
Our program is at the forefront of cutting-edge research and innovative treatments for spina bifida. In 2019, our team partnered with Los Angeles Fetal Surgery through the Fetal Maternal Center to perform the first fully laparoscopic surgery to repair fetal open spina bifida in the Western United States. Since then, we’ve completed this procedure, also referred to as a “keyhole surgery,” on over 80 patients, leading to fewer risks to the mother and much better outcomes for the baby. We also collaborate with top institutions, such as the Center for Disease Control (CDC), and participate in groundbreaking studies, allowing us to offer the most advanced care and give patients the best possible outcomes.
Comprehensive Care
Our diverse team works together to manage the complex challenges associated with spina bifida, such as hydrocephalus, bowel and bladder control, and mobility issues.
We also provide vital psychosocial support, genetic counseling, and prenatal diagnosis to ensure the best possible outcomes for our patients and their families. The medical care of children with Spina Bifida at Children’s Hospital Los Angeles is provided by world-class experts consisting of:
- Pediatricians
- Neurosurgeons
- Neonatologists
- Orthopedists and Orthotists
- Urologists
- Colorectal surgeons
- Gastroenterologists
- Registered Dietitians and Nutritionists
- Social workers
- Nurses
- Physical therapists
- Occupational therapists
- Psychologists
Conditions we treat
We treat a range of spinal cord abnormalities, including:
- Spina bifida:
- Myelomeningocele
- Myeloschisis
- Meningocele
- Hydrocephalus
- Sacral Agenesis/Caudal regression syndrome
- Spinal cord injuries
Treatment and support services we offer
- Surgical options include prenatal fetoscopic repair, open maternal-fetal surgery, or postnatal repair
- Prenatal evaluations, counseling, and personalized treatment plans
- Help with maximizing mobility with physical and occupational therapy, braces and splints, positioning aids, and walkers
- Assistance with managing bladder control in partnership with our Colorectal Center
- Patient and family education for managing the child’s condition
- Counseling, social work, and connection to community resources
Preparing for Adult Care
Our multidisciplinary team focuses on preparing youth for a successful transition to adult care, helping them develop the independence and self-care skills they need to thrive as they grow. These services emphasize maximizing educational opportunities offering support with college planning, job training, and skill development. For patients with disabilities, we provide guidance on driving, participating in sports, and navigating daily activities. Additionally, for those with intellectual disabilities, we assist with the conservatorship process and other crucial life decisions, ensuring all aspects of the child’s transition to adulthood are covered through personalized care.